|The ubiquitous Chinese symbol yin-yang|
We learned at just 11 days old that Lucy had PKU, requiring us to give her a special PKU formula that is stripped of Phe but contains the remaining protein-based amino acids critical to her development. Though I was extremely sad I had to temporarily stop nursing her to get her Phe levels out of the danger zone, I was able to start again a couple weeks later. We quickly adjusted to a combination of nursing and formula-based bottles, and feeding time was easy.
Fast forward to today. We started the girls on solids at about five and half months old, and they've adjusted well. In fact, Lily is my piglet! She eats anything and everything, and in very large quantities! Lucy, who has a limited diet requiring me to weigh her food in order to calculate the Phe in each item, has been less interested in eating overall, though that is quickly changing.
However, I've been struggling. It is VERY hard to give Lily such a huge variety - jars of every fruit and vegetable imaginable, combined with meat, veggie and grain combos and now, finger foods including puffs, Cheerios, and pieces of soft fruit like pears, peaches and melons. It breaks my heart to give her more of what she likes, while right next to her, Lucy "only" gets her measured amount. She is also starting to notice what's on her sister's tray, and even reached over last night to steal a Cheerio!
I "sneak" her bits of the fruit that I'm giving Lily, but have to be careful as I'm not yet including it in her daily Phe calculations. I know my feelings have nothing to do with Lucy - she loves her more-limited selection of fruits, veggies, and even rice puffs (which I do count). I don't know if it's having twins who are the same age and development level sitting side-by-side, but mealtimes have been making me feel sad lately. I am very careful to keep an upbeat attitude around the girls though, because we must never make Lucy feel she is "different" or that her diet is something to be sad about, but it's hard for me right now, nonetheless.
Lucy, eating rice cereal and fruit puree.
|Lily, looking like she has badger stripes on her nose from prune and oatmeal cereal!|